The Lyndonville Research Group was formed by Dr. David Bell to compile and disseminate information regarding Chronic Fatigue Syndrome. The team is working on such projects as raising awareness in communities and schools of the presence of children and adolescents who have CFS and how to best meet their medical, educational and social needs.

Our most recent undertaking has been a twenty year follow-up study of the first 100 children that were treated by Dr. Bell for CFS. The findings were then presented by Dr. Bell at the 2005 International Conference of Fatigue Science in Tokyo, Japan in February, 2005. We are anticipating a very busy year in the realm of research and are beginning several new projects in the near future.

For those interested in disability issues,
a writer friend in the LRG sends this:

"I am a writer seeking contact with CFIDS patients for an account of CFIDS disability issues. I would like to interview people willing to share their thoughts and stories concerning any or all of the following: 1) how your illness has impacted your ability to work; 2) how having CFIDS has affected your own sense of identity and your capacity to live a normal life; 3) what kinds of experiences you've had negotiating disability issues with the medical community, with government and private insurance carriers, and with the general public as well as those near and dear to you who've had their own struggles to understand this illness.

I can promise neither fame nor remuneration for your generosity, only my own effort to respect these grave and delicate matters and to write with the intent of raising public awareness about CFIDS and the cultural climate in which we experience it.

I taught college English for 27 years and have had CFIDS for over 20 years. I now live on SS disability and the income from a very small writing business. I will be as timely as possible in my replies to you. Thanks to all who write: CFIDS SCRIBE/280 Speed Hill Rd./Brooktondale, NY/14817."